In 2014 after I was diagnosed with Guillain-Barre Syndrome, my husband and I drove from Texas to Ohio to visit the Cleveland Clinic. The reason for my appointment was to get a second opinion but while I was there, the doctors encouraged us to attend a chronic pain rehabilitation program. This was an intensive outpatient program that had support groups for the entire family. My husband said he got a lot out of the meetings and it helped him better understand what I was going through.
I highly recommend a pain rehabilitation program especially for life long conditions. Typically, the doctors that diagnose us aren't the ones to help us c
ope with our new normal. In many cases, patients are sent out the door with their Rx script and a six month follow-up appointment and that is it. These programs teach coping skills to help ease the stress of chronic pain. #rehabilitation
The effect of chronic illness on family dynamics can be overwhelming. New family members take on tasks that were previously handled by the ill person. Supportive friends and family make all the difference in the world. You are not alone. #chronicillness
I started a chronic pain support group a few years back that is sponsored by the American Chronic Pain Association. Check out the calendar and topics on the home page, or email firstname.lastname@example.org