Living with a life-long medical condition requires grace, gratitude, and acceptance. The ability to manage disappointments and expectations of how you thought your life would go is essential. The practice of: meditation, prayer, deep breathing, mindfulness, and exercise can reduce overall pain levels. Healing is not linear. It requires a combination of physical and mental work required to live your best life.
This is a story about a journey through rare diseases, difficult conditions, and the coping skills used to thrive, not just survive. I hope my journey can help others affected by chronic pain. We can come together all over the world and create a tribe of support, collaboration, and kindness.
This book provides practical, real world hacks for dealing with chronic pain. The following conditions are discussed: Guillain-Barre Syndrome (GBS), fibromyalgia, psychogenic nonepileptic seizures (PNES), anxiety, and depression.
I have heard countless stories and even experienced it myself. I am talking about gaslighting judging, or shaming someone because of their medical condition. In many cases, maybe the person didn't mean for the comment to be hurtful but nonetheless it is. When I was newly diagnosed, I felt the need to over explain my condition, I felt like I needed to prove that I wasn't lazy. Also, chronically ill folks get accused of faking their symptoms. #disabled My therapist told me no
"The brain automatically uses physical symptoms as a way to involuntarily express distress or discomfort." These automatic brain responses may develop due to an accumulation of stressful factors and or learned behavior, or troubling experiences over time. It's like water bursting through a dam during a flood where it was held back for years. #PTSD Historically, these types of episodes where referred to as "hysterical". For example, the musician, Ray Charles, experienced hyste
In 2015, I attended the Cleveland Clinic chronic rehabilitation program. We did some group therapy and when I introduced myself to the group, I introduced myself as a patient and not a person. Up to that point I didn't realize I was letting my diagnosis be my identity until the doctor pointed it out. The light bulb came on and sparked the journey to find who I really am. I was so wrapped up in my illness, I had lost my purpose. #therapy #purpose I knew that laying in bed o
In my book, "Chronic Pain Hacker", I discuss my journey of physical and mental pain relating to unresolved trauma that resulted in PTSD. Here is a quote, "My story illustrates how trauma was always in the background. I was susceptible to illness due to unresolved psychological factors and stress." It's similar to a computer with multiple windows open that are never closed down properly. #chronicpainhacker This concept was discussed in the book, "The Body Keeps Score" by Bes
In chapter 2 of my book, "Chronic Pain Hacker", I talk about radical acceptance and how to use it to reduce suffering and increase joy in your life. #chronicpainhacker Expectations play a big role in chronic pain management. Unrealistic expectations can lead to anxiety, grief, and depression when the "miracle cure" doesn't come to fruition. Suffering is increased, when expectations are not met. A wise therapist from my Dialectical Behavior Therapy #dbt class gave me this form