Living with a life-long medical condition requires grace, gratitude, and acceptance. The ability to manage disappointments and expectations of how you thought your life would go is essential. The practice of: meditation, prayer, deep breathing, mindfulness, and exercise can reduce overall pain levels. Healing is not linear. It requires a combination of physical and mental work required to live your best life.
This is a story about a journey through rare diseases, difficult conditions, and the coping skills used to thrive, not just survive. I hope my journey can help others affected by chronic pain. We can come together all over the world and create a tribe of support, collaboration, and kindness.
This book provides practical, real world hacks for dealing with chronic pain. The following conditions are discussed: Guillain-Barre Syndrome (GBS), fibromyalgia, psychogenic nonepileptic seizures (PNES), anxiety, and depression.
I have heard countless stories and even experienced it myself. I am talking about gaslighting judging, or shaming someone because of their medical condition. In many cases, maybe the person didn't mean for the comment to be hurtful but nonetheless it is. When I was newly diagnosed, I felt the need to over explain my condition, I felt like I needed to prove that I wasn't lazy. Also, chronically ill folks get accused of faking their symptoms. #disabled My therapist told me no