Living with a life-long medical condition requires grace, gratitude, and acceptance. The ability to manage disappointments and expectations of how you thought your life would go is essential. The practice of: meditation, prayer, deep breathing, mindfulness, and exercise can reduce overall pain levels. Healing is not linear. It requires a combination of physical and mental work required to live your best life.
This is a story about a journey through rare diseases, difficult conditions, and the coping skills used to thrive, not just survive. I hope my journey can help others affected by chronic pain. We can come together all over the world and create a tribe of support, collaboration, and kindness.
This book provides practical, real world hacks for dealing with chronic pain. The following conditions are discussed: Guillain-Barre Syndrome (GBS), fibromyalgia, psychogenic nonepileptic seizures (PNES), anxiety, and depression.
In 2015, I attended the Cleveland Clinic chronic rehabilitation program. We did some group therapy and when I introduced myself to the group, I introduced myself as a patient and not a person. Up to that point I didn't realize I was letting my diagnosis be my identity until the doctor pointed it out. The light bulb came on and sparked the journey to find who I really am. I was so wrapped up in my illness, I had lost my purpose. #therapy #purpose I knew that laying in bed o