Living with a life-long medical condition requires grace, gratitude, and acceptance. The ability to manage disappointments and expectations of how you thought your life would go is essential. The practice of: meditation, prayer, deep breathing, mindfulness, and exercise can reduce overall pain levels. Healing is not linear. It requires a combination of physical and mental work required to live your best life.
This is a story about a journey through rare diseases, difficult conditions, and the coping skills used to thrive, not just survive. I hope my journey can help others affected by chronic pain. We can come together all over the world and create a tribe of support, collaboration, and kindness.
This book provides practical, real world hacks for dealing with chronic pain. The following conditions are discussed: Guillain-Barre Syndrome (GBS), fibromyalgia, psychogenic nonepileptic seizures (PNES), anxiety, and depression.
Chronic illness can be so isolating. I know when I am having a rough day...I feel like hiding. I tend to keep to myself on those days which is difficult because that is when I probably need the most support from others. I had to learn mantras like, "You are not alone", "It will be ok", and "Building community is important." #chronicpain #chronicillness I think for many folks that have been chronically ill for years or even decades, we feel like we have lost who we used t
I have heard countless stories and even experienced it myself. I am talking about gaslighting judging, or shaming someone because of their medical condition. In many cases, maybe the person didn't mean for the comment to be hurtful but nonetheless it is. When I was newly diagnosed, I felt the need to over explain my condition, I felt like I needed to prove that I wasn't lazy. Also, chronically ill folks get accused of faking their symptoms. #disabled My therapist told me no
In 2015, I attended the Cleveland Clinic chronic rehabilitation program. We did some group therapy and when I introduced myself to the group, I introduced myself as a patient and not a person. Up to that point I didn't realize I was letting my diagnosis be my identity until the doctor pointed it out. The light bulb came on and sparked the journey to find who I really am. I was so wrapped up in my illness, I had lost my purpose. #therapy #purpose I knew that laying in bed o
In 2014 after I was diagnosed with Guillain-Barre Syndrome, my husband and I drove from Texas to Ohio to visit the Cleveland Clinic. The reason for my appointment was to get a second opinion but while I was there, the doctors encouraged us to attend a chronic pain rehabilitation program. This was an intensive outpatient program that had support groups for the entire family. My husband said he got a lot out of the meetings and it helped him better understand what I was going t
Shannon Green started as a facilitator for American Chronic Pain Association (ACPA) chronic pain support groups in Austin, Texas. Due to Covid, we have moved to an online format via monthly zoom calls. We are a community of folks with chronic pain supporting each other. You are not alone. We work on coping skills to more effectively manage our pain. Potential topics are: meditation, movement, breath work, gratitude, emotion regulation, and spirituality, etc. #chronicpainhack
Check out my book, Chronic Pain Hacker, sold on Amazon. This was a labor of love that took me five years to complete due to chronic pain. It was always my dream to write a book. I share tips and tricks for managing chronic pain using holistic approaches. I share my reviews of holistic services like acupuncture, pain relief products, and supplements. #chronicpainhacker #pain #supportgroups #chronicpain